Everything No One Tells You About Parenting a Disabled Child with Kelley Coleman
As the host of “Modern Mom Probs,” I’ve had the privilege of engaging in conversations that are not only enlightening but also deeply personal. In a recent episode, I sat down with Kelley Coleman, a remarkable individual whose journey from a feature film development executive to an author and advocate for parents, caregivers, and individuals with disabilities, has been nothing short of inspiring. As a mother of two boys, one with multiple disabilities, Kelley brings a wealth of experience and empathy to the table. Today, I want to share with you the profound insights from our discussion, which I believe will resonate with many and provide guidance in the often-overwhelming realm of parenting a disabled child.
The Journey of Advocacy and Understanding
Kelley’s story is one that many parents can relate to. The challenges and experiences of raising a child with disabilities are unique and can often feel isolating. However, Kelley’s advocacy work and her new book, “Everything No One Tells You About Parenting a Disabled Child,” aim to bridge that gap by offering support and resources to those navigating similar paths.
During our conversation, Kelley emphasized the critical need for validation and support within the community. It’s not just about having access to resources; it’s about the community understanding and embracing individuals with disabilities. This sense of familiarity can make a world of difference in the lives of those affected.
Embracing the Universal Nature of Disability
My own experiences with disability, including my family’s involvement with a home for the blind and my work with Best Buddies in college, have taught me the universal nature of disability. It’s a reminder that empathy, understanding, and support are essential for individuals and families facing these challenges.
The Realities of Parenting a Disabled Child
Kelley and I delved into the practical aspects of parenting a disabled child. From navigating paperwork and insurance to financial planning, the complexities are vast. Yet, it’s crucial to find moments to celebrate victories, no matter how small. Kelly shared her approach to building in victories, such as seeing her child receive necessary therapies, which serve as tangible accomplishments that fuel the journey forward.
The Humor in the Chaos
Parenting is never without its humorous moments, and Kelley’s anecdote about wearing the same pants for five days to simplify her life had us both laughing. It’s a lighthearted reminder that sometimes, practicality trumps all else, and that’s perfectly okay.
Finding Your “Yellow Sweater”
In the midst of challenges, it’s important to find your “yellow sweater” – those small sources of happiness and comfort that can uplift your spirits. For Kelley, it’s a literal yellow sweater, while for others, it might be a favorite book, a quiet moment with a cup of tea, or a comforting playlist.
The Power of Community
One of the most heartwarming aspects of our conversation was the emphasis on the supportive community. Organizations like the Special Education Parent Advisory Group (SEPAG) provide a sense of belonging and understanding that is invaluable. I shared my experience of attending a meeting for parents of children with disabilities and the realization that we are not alone in our struggles.
Embracing Diversity and Authenticity
Kelley stressed the importance of embracing the diversity of experiences within the community of parents and caregivers of disabled children. There’s no hierarchy or judgment – just genuine connection and understanding. It’s about being authentic and open about the real struggles and joys of parenting a disabled child.
A Heartfelt Farewell
As we wrapped up our conversation, I couldn’t help but feel grateful for the insights and experiences Kelley shared. It’s conversations like these that build the community and support that are so crucial for parents of disabled children.
